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Ill. family volunteers to remember son

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Larry Lefferts examines odds and ends that belonged to his son, John, on a bookcase in his office Dec. 14 in Normal. John died suddenly of an aortic dissection at age 22. More than 37 people have received tissue donations following his death. The Lefferts' believe that by choosing the path of tissue donation they are keeping their son's memory alive by helping others live. (AP photo)

NORMAL – Since John Lefferts died suddenly and unexpectedly of an aortic dissection at age 22, his family has been on a journey.

“I feel like my heart is truly broken,” said his mother, Vivian Lefferts of Normal. “After my son died, I thought ‘How will I tell people about John? How will I keep his memory alive?’”

A path chosen by Vivian and Larry Lefferts was to keep their son’s memory alive by helping others to live. They agreed that their son would be a tissue donor. His two corneas and 35 bones and tissues have improved the lives of 37 people in 14 states.

“It’s a way for his legacy to live on,” said Eleanor Hess of Normal, John’s sister.

The Lefferts became volunteer-advocates with the Gift of Hope Organ & Tissue Donor Network. They have spent much of the past eight years encouraging people to register to be organ and tissue donors by telling John’s story.

They are members of the organization’s Donor Family Advisory Council and led a letter-writing campaign supporting the bill that created the Illinois Organ/Tissue Donor Registry in 2006. Their efforts are being honored with Vivian’s selection to be among 32 riders from throughout the country on the Donate Life Float during the Rose Parade in Pasadena, Calif., on Jan. 1. Riders will include living donors, organ and tissue donation recipients and donor family members.

“The float honors the millions of people touched by organ and tissue donations across the country and the millions of people who are waiting (for a transplant),” said Gift of Hope spokesman Tony Sullivan.

“The Lefferts stand out because of the commitment they have shown to raise public awareness,” Sullivan said. While Vivian will be on the float, she represents Larry, Eleanor and other family members who will be watching the parade in Pasadena.

“We can’t think of a better representative than Vivian,” Sullivan said. “The theme of this year’s float is Journeys of the Heart. When John died, the Lefferts started on a journey of the heart and they have been on that journey for more than eight years.”

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